About this Webportal

Methodology

The three core elements of the Histio Net online expert support have been defined by a team of histiocytosis experts:

Frequently Asked Questions:

For the development of FAQ lists, many different websites were reviewed to find good examples and to decide on the optimum structure for the lists which will be separate for professionals and for patients. The FAQ lists for patients/parents and the public were elaborated in collaboration of histiocytosis experts and members of different patient associations for histiocytosis. Different chapters were built for LCH, HLH, ECD and rare diseases in general.

Frequently asked questions for patients, families and the public

Contact Form:

Please send us your request and give a feedback, if the information in this webportal has been helpful for you.