Maps of experts in Haemophagocytic Lymphohistiocytosis (HLH)

How can I find an expert in HLH?

Please choose your country in the left menu. There you will find maps and lists of experts. The information is presented in the language of the chosen country.

What is an expert in HLH?

Following the definition established after many discussions among experts involved in HLH for many years, we define two levels of expertise in HLH.

Centres of Reference:

We define centres of reference according to the definition of the European Union Committee of Experts on Rare Diseases (EUCERD), former Rare Diseases Task Force (RDTF).
Link to EUCERD webpage and choose "Reports"

Centres of Expertise / Specialised Centres:

Centres are only listed in this category, if there is at least one responsible person who fulfils at least one of the following criteria:

  • Minimum number of peer reviewed publications about HLH: 1 OR
  • Multiple patients with HLH seen/treated