When you hear about histiocytosis for the first time


When patients are diagnosed with histiocytosis, they start looking for information. An incredible lot of impressions from the world wide web must be sorted out in order to get reliable information.

The Histio Net initiative is meant to provide as much reliable information as possible about Langerhans Cell Histiocytosis and associated syndromes. On these pages for patients you will find lists with frequently asked questions (FAQ) giving information about rare diseases and histiocytoses in general as well as about some of the different histiocytic disorders. The information for kids who want to know more is also useful for grownups who are looking for a plain introduction.