For Professionals
Information for physicians, scientists, and other health professionals
For Patients
Information for patients, families, and the interested public
Maps of Experts
Find experts for the different histiocytic diseases, all over the world.
Understand why it is difficult to define “expertise” and how that problem is solved for this web portal.
ECHO - European Consortium for Histiocytosis
A Reference Network for Langerhans Cell Histiocytosis and associated Syndromes
We want to join efforts in puzzling about Langerhans Cell Histiocytosis (LCH), Juvenile Xanthogranuloma (JXG), Erdheim-Chester-Disease (ECD), Rosai-Dorfman-Disease (RDD/SHML) and associated rare histiocytoses. Our goal is to determine better diagnostic and therapeutic procedures, to improve care and follow-up, and to reduce reactivations and late sequelae. In addition, we want to inform about the problems which patients who are concerned by a rare disease have to face. And we want to show the possiblities to find help.